From their “about us” page: “‘Being Patient’ is an editorially independent news and community platform that aims to create clarity around complex health issues and be a trusted, accurate source of information for the people impacted by a disease.”

Some good, apparently well-vetted info on Alzheimer’s and related dementias. Emphasis on personal narratives from people with dementia, and from caregivers.

  • ZenGrammy@lemmy.worldM
    link
    fedilink
    English
    arrow-up
    1
    ·
    1 year ago

    This is a nice resource. I’m glad you posted it. I pinned it for you because it has a lot of information that people could use over a long period of time.

    • 108beads@lemm.eeOPM
      link
      fedilink
      English
      arrow-up
      2
      ·
      1 year ago

      Great! I just today discovered it; decided to set up a Google alert for “Alzheimer” and there it was. Still exploring. Started in 2017; appears to update pretty frequently. I like that it’s written in language that is manageable for non-scientist readers, but has links to the original published research materials for those who want more details. Appears to draw from and organize well a wide swath of materials.